Emmaleigh Ann

I realize that I haven't updated this in a long time.

We found out about 6 weeks ago that we are having a little girl. She has been diagnosed with Semi-lobar Holoprosencephaly. Basically that means that part of her brain didn't separate like it was supposed to.

We do know that she will be a very special baby. We don't know what the extent of her disabilities will be. I had an amniocentesis done to check for any chromosomal abnormalities, and it came back normal so that was great. Her prognosis is good at this point. However, there is a chance that she may not survive infancy. Due to the nature of this diagnosis, there is just no way to tell until after she is born. Holoprosencephaly (HPE) affects children very differently, depending on which part of the brain is separated. No two cases are the same. There are some children with HPE that do not survive, and some that do.

We are very excited to meet baby Emma. We love her so much already and she has blessed our lives in a very big way.

If you would like more information, please visit : http://www.holoprosencephaly.net/Category:Definition_Of_HPE

This is a website that was created by parents and has some great information that is easier to understand. It has been a great resource to us already.

Thank you all for your prayers and support.