Emmaleigh Ann

It has been 4 weeks since the passing our precious daughter Emmaleigh. She would have been 5 weeks old today. I thought I would take a moment to post some pictures of her.

At our 20 week ultrasound, our baby was diagnosed with Holoprosencephaly (HPE), which is a condition where the 2 lobes of the brain do not separate. We were told that this condition was not compatible with life. We were heartbroken. We were told that the specific type that she had was Semi-Lobar HPE, which is the middle of the three types. We were hopeful, as we had been in contact with many parents who have children with this specific type, that were doing well.

Emmaleigh was born on May 2, 2008, 8 days after her due date. She just didn't want to come into this world! She was 6 lbs 7.8 oz, and was 18.5 inches long. The next day, a CT scan came back with the diagnosis of Alobar HPE, which is the most severe type. Our hearts sank, because we knew what that meant. Most babies with this type usually do not even survive birth.

May 9, 2008, at the age of 7 days, Emmaleigh was born into heaven. She will always be our little angel.

View a slideshow of her pictures set to music at: http://www.photodex.com/sharing/viewshow.html?fl=2972707&alb=0